Document NNNbp1zxqokVOopg2erN05MMw

To: From: Sent: Subject: Hupp, Millan[hupp.millan@epa.gov] Solve ME/CFS Initiative Thur 9/21/2017 8:44:43 PM Research 1st | September | Ramping up Research Research-1st Septm.l?er;2Q17:'Newlprograms::h:rsear^^^ __________________________________________________________________________________________________________________ Dear)Friends;SW:T)FC)FSyCrw Changing I am thrilled to report to our community the launch of a new science and discovery program dedicated to ME/CFS (Myalgic Encephalomyelitis I Chronic Fatigue Syndrome) at the prestigious Memorial Sloan Kettering Cancer Center (MSKCC) in New York City. This comes after we shared news last month of another SMCI-Directed Research Initiative at Brigham and Women's Hospital (BWH) in Boston,... READ MORE ZaherBahfelhDglRA^^ Chief Scientific Officer and Vice President for Research Solve ME/CFS Initiative (SMCI) launched a new partnership with the prestigious Memorial Sloan [Kettering Cancer Center (MSKCC) in New York City. The collaboration between the MSKCC 17cv1906 Sierra Club v. EPA ED_001523B_00000623-00001 dentist team and SMC! will investigate the biology of ME/CFS and explore investigation trategies using advanced technologies. This effort is the culmination of a series of meetings md strategy sessions over the past year... READ MORE co h co i CU CD o co o 2 > 0) O u r- tn J co ra T5 O ww E M tn ro w o ya ai ui O co ra co Gu_O O UJ co tn co co E co 0u_) o LU CO co rn CO o o c co tn o o O co w O) O) 5 Ui 8 (U ' CL (/) 0) co ro 0) C/J UJ. w E 2 05 UJ Qi ra gs tn w o Ol O co tn co jp a. mi 5 17cv1906 Sierra Club v. EPA ED 001523B 00000623-00002 RiiiewO By Vicky Whittemore, PhD; Program Director of the Channels, Synapses and Circuits Cluster in \the National Institute of Neurological Disorders and Stroke (NINDS) at the National Institutes of \Health (NIH). The Center for Scientific Review (CSR) is the gateway for National Institutes of Health (NIH) grant applications and their review for scientific merit. They organize the peer review groups or study sections that evaluate the majority (75%) of the research grant applications sent... READ MORE On Monday, September 11, Dr. Maureen Hanson of Cornell University visited SMCI's Los Angeles headquarters. Dr. Hanson's visit was an opportunity to discuss recent developments in ME/CFS and coordinate efforts with SMCI Chief Scientific Officer and Vice President for Research, Dr. Zaher Nahle. They also addressed ongoing collaborative projects, including a targeted discussion on a number of planned studies and events... READ MORE Pictured above: Simmaron Board chairman Jan Armstrong andSMCI Director ofAdvocacyandPublic Relations Emily Taylor 17cv1906 Sierra Club v. EPA ED_001523B_00000623-00003 On September 9th, the Simmaron Research Institute (SRI) hosted its annual Patient Day and Research Update in Incline Village, Nevada. This three-hour conference and update included scientific presentations from Drs. Konnie Knox and Mady Hornig of SRI's Scientific Advisory Board and Dr. Maureen Hanson, who serves on both SRI's Scientific Advisory Board and the Solve ME/CFS Initiative's Research Advisory Council. Dr. Hanson presented data from her recent research collaboration with SMCI and Metabalon which investigates the causes of postexertional malaise (PEM). ...READ MORE Updates from the ME/CFS fight in Washington DC The Solve ME/CFS Initiative is committed to education, awareness, and advocacy efforts in Washington DC and we are pleased to report on our progress so far. Three major actions happened in Washington DC this month for ME/CFS, previously called chronic fatigue syndrome, including funding victories, the first state-wide letter to the NIH, and a partnership with Jennifer Brea's Unrest. ...READ MORE 17cv1906 Sierra Club v. EPA ED_001523B_00000623-00004 The human papillomavirus (HPV) vaccination was previously implicated through anecdotal evidence and small series cases as a possible triggering cause of ME/CFS. However, a recent study titled "HPV vaccination and risk of chronic fatigue syndrome/myalgic encephalomyelitis: A nationwide register-based study from Norway" effectively weakens the assertion of a causal link between the development of ME/CFS following HPV vaccinations... READ MOREyF/O The work of SMCI is entirely fueled by gifts large and small from people just like you. 17cv1906 Sierra Club v. EPA ED_001523B_00000623-00005