To: From: Sent: Subject:
Hupp, Millan[hupp.millan@epa.gov]
Solve ME/CFS Initiative
Wed 11/15/201711:31:29 PM
Research 1st I NOVEMBER I Exclusive Interviews and Reports
R0~,enrch 1st November 2017: Exclusive interviews with Ors. Inn Lipkin apd Waller Koroshetz w'ih the latest reports from conforences, agencies, and resc-,arc:h programs in ME/CFS
Email not displaying correctly? View it in your browser.
View an exclusive interview with Dr. Ian Lipkin of Columbia University, the director of the new NIH-funded Center for Solutions for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (CfS
for ME/CFS).
Dear Friends,
he recent conversation with the National Institute of Neurological Disorders and Stroke (NINOS) Director, Dr. Walter Koroshetz, on an episode of the White House Chronicle, was a imely assessment of current ME/CFS affairs. This wide-ranging science and policy conversation is particularly meaningful at this juncture ... READ MORE
ours,
Zaher Nahle PhD, MPA Chief Scientific Officer and Vice President for Research
n inside look at ME/CFS research funding with NINOS Director, Dr. Walter Koroshetz
17cv01906 Sierra Club v. EPA
ED_0015238_00000413-00001
Our Chief Scientific Officer/Vice President of Research Dr. Zaher Nahle sat down recently with he Director of the National Institute of Neurological Disorders (NINOS) Dr. Walter Koroshetz on he nationally televised program the White House Chronicle with host Llewellyn King. Ors. Nahle and Koroshetz discussed current research and funding for ME/CFS, including the recent NIHfunded ME/CFS consortia roects.
his episode is the second episode of White House Chronicle featuring SMCI. If you missed the episode featuring SMCI President Carol Head, watch it here: htt :// o.solvecfs.or /e/192652/crsvhMeC 11 U/?vdfz/49430181
Dr. Nahle featured in two ME/CFS Articles
Dr. Zaher Nahle was recently featured in two articles highlighting recent ME/CFS advancements. The articles investigate the potential impact of the National Institutes of Health's (NIH) recent investment to fund three Collaborative Research Centers (CRCs) and a Data
17cv01906 Sierra Club v. EPA
ED_001523B_00000413-00002
Management Coordinating Center (DMCC). Although still insufficient, we see positive trends in research support that promise to advance our understanding of ME/CFS and bring broader recognition and treatments from the scientific community. READ MORE
Dr. Nahle Attends International ME/CFS Conference in Sweden
In October, RME (The Swedish National Association for ME-patients) organized two open conferences aimed at engaging health care professionals in Stockholm (Oct. 18) and Malmo (Oct. 19). SMCl's Chief Scientific Officer and VP for Research Dr. Zaher Nahle was invited to attend a roundtable meeting to discuss ongoing research and clinical developments. The roundtable meeting, held October 17 -18, was international in attendance and scope. It covered findings and planned research in Sweden, Denmark, the United Kingdom, and the United States. READ MORE
17cv01906 Sierra Club v. EPA
ED_001523B_00000413-00003
2016 Ramsay Team 2 Research Update
Dr. Fane Mensah (University College London (UCL)) provided SMCI with a progress update on he Ramsay Award Program 2016 Team 2 project. Dr. Mensah discussed the driving force behind the study design, potential implications of the research, and the intercontinental partnership making it possible. READ MORE
In case you missed it: 2017 R.amsay Research Grant Awardees
Our second cohort of Ramsay Award Program grants were announced in October. The Ramsay ward Program 2017 research teams are exploring diverse promising areas including immunity,
metabolomics, epigenetics, and the gut microbiome - to name a few. We will continue to update the community on these projects as work kicks off in 2018. Read more about the Ramsay Award Program 2017 cohort, including project abstracts, here
17cv01906 Sierra Club v. EPA
ED_001523B_00000413-00004
CDC Holds Informational Stakeholder Call
On November 2, the Centers for Disease Control (CDC) held a Stakeholder Engagement and Communication (SEC) Call. The purpose of the call was to share information and conduct outreach with the broader ME/CFS community. This call, 'Take Home Messages from the 2015 Institute of Medicine Report on ME/CFS" included updates on CDC activity from Elizabeth Unger, PhD, MD; and perspectives from three Institute of Medicine Committee members, Lucinda Bateman, MD (Bateman Horne Center); Ellen Clayton, MD, JD (Vanderbilt University); and Peter Rowe, MD Johns Ho kins. READ MORE
17cv01906 Sierra Club v. EPA
ED_001523B_00000413-00005